Common myths about the end-of-life care option : NPR

Common myths about the end-of-life care option : NPR

end-of-life care myths

The Reality of End-of-Life Care Myths

Evelyn Breuning, a terminally ill hospice resident at 91, is seen here sitting with music therapist Jen Dunlap in her bed in August 2009 in Lakewood, Colo. The nonprofit hospice, one of the oldest in the United States, provides care for the terminally ill, regardless of their ability to pay, with most residents covered by Medicare.
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Evelyn Breuning, 91, a terminally ill hospice resident, shares a moment with music therapist Jen Dunlap in her Lakewood, Colo., bed in August 2009. The hospice, among the nation’s oldest, offers care to the terminally ill, irrespective of their financial situation, with the majority covered by Medicare.

Death is an inevitable part of life, and decisions concerning the end of life can be challenging. Hospice care, designed for individuals in the final stages of incurable illnesses, is a viable option. Annually, approximately 1.7 million Medicare beneficiaries access this specialized healthcare.

Former President Jimmy Carter, the longest-living former U.S. president at 99, became part of this statistic a year ago when his family disclosed his transition to hospice care.

“Following several brief hospital stays, former U.S. President Jimmy Carter chose to spend his remaining time at home with family, opting for hospice care over further medical interventions,” the statement conveyed. “He enjoys the unwavering support of his family and medical team.”

While many assumed this move indicated Carter’s imminent passing, hospice care is not exclusively for those with a few days left, nor does it equate to abandoning medical attention altogether.

Contrary to common belief, hospice care can potentially extend life expectancy, as indicated by the American Academy of Family Physicians and supported by research. Although it doesn’t cure illnesses, hospice care effectively manages pain and other symptoms, emphasizing the comfort, dignity, and quality of life of the individual in their final days.

Let’s debunk some myths surrounding end-of-life care and understand how hospice care truly operates.

Debunking Misconception #1: End-of-Life Care Myths

End-of-life care is not solely reserved for individuals who have lost hope in life. It encompasses enhancing the quality of life during this crucial period.

Amy Tucci, the president and CEO of the Hospice Foundation of America, emphasizes that as individuals approach the end of life, their definition of hope evolves. Their focus shifts towards aspects like quality of life, comfort, and serenity. Being surrounded by loved ones and cherished belongings becomes paramount, aiming for the highest possible quality of life.

A Good Life And A Good Death: How Palliative Care Is Changing Medicine

The primary objective shifts from curing an ailment or extending life to providing symptom relief and enhancing the quality of life for patients during their final days, dispelling

end-of-life care myths

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Debunking End-of-Life Care Myths: Hospice Care Isn’t Exclusively for Terminal Cancer Patients

Debunking End-of-Life Care Myths: Hospice is Not a Physical Location

End-of-life care myths often portray hospice as a specific place where individuals receive care. However, in reality, hospice services are predominantly provided in the comfort of the individual’s own residence.

“In general, hospice care is delivered to patients in their own familiar environment,” explains Angela Novas, a licensed nurse practitioner and Chief Medical Officer at the Hospice Foundation of America. “Whether it’s a nursing home or a family apartment, hospice professionals come to where the patient resides to deliver care.”

Patients Want To Die At Home, But Home Hospice Care Can Be Tough On Families

Dispelling End-of-Life Care Myths

Patients receiving end-of-life care are each allocated a dedicated team of healthcare professionals, including a physician, registered nurse, home health aid, social worker, and chaplain as a minimum requirement. This interdisciplinary team maintains regular communication with the patients, offering comprehensive medical, emotional, spiritual, and grief support not only to the individual but also to their family members, according to Novas.

Debunking End-of-Life Care Myths: Misconception #4 – Leaving Hospice Care

Debunking End-of-Life Care Myths: The Misconception About Hospice Initiation

“A common sentiment expressed by individuals and their loved ones is the desire for a better understanding of hospice and earlier access to it,” Tucci emphasizes.

Black-owned hospice seeks to bring greater ease in dying to Black families

Dispelling End-of-Life Care Myths

According to Tucci, there is a lack of awareness among many patients regarding their ability to kickstart hospice care independently and the steps to initiate this process. Often, individuals either avoid discussing hospice due to fear or wait for a healthcare provider to broach the topic, which may not always occur.

If a patient no longer wishes to continue with certain treatments, they or their caregiver hold the power to commence hospice care by engaging in a dialogue with their physician or by reaching out directly to a nearby hospice provider to request an assessment and assess eligibility.

Tucci emphasizes that each medical condition presents unique signs indicating when it might be appropriate to consider commencing hospice care.

Debunking End-of-Life Care Myths: Myth #6 – Hospice care is not exclusive to the elderly

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